The activities and direction of Down Syndrome NSW are overseen by a Board of directors who are elected by the membership of the Association each year.

All positions are voluntary and both Ordinary members and Affiliate members can nominate for the Board.

Board Executive

Greg Simmons, President

Greg's involvement with the Down syndrome community has been gained through the birth of his Daughter, Kate, who has Down syndrome. He has spent nearly 21 years sitting on various not-for-profit boards and committees - Down Syndrome Association of SA, Lifestart, Special Olympics Upper North Shore Region, Association for Children with a Disability and, Down Syndrome NSW.

In 2012, Greg co-founded a community based Fun Run – the Kuringgai Chase Fun Run and Barry Easy Walk - to raise funds for the Special Olympics Upper North Shore Region. This year, Greg has also ran in the City2Surf with the DS NSW team.

Greg was originally invited on the Board as a commitment to oversee the successful adoption of Blackbaud technology at DS NSW for our Community Engagement and Membership teams. Since then, Greg has acted as a trusted advisor to the Association, utilising his background in fundraising and outcomes technologies.

Jason Lloyd, Vice President


John Namey (FCA, FGIA), Treasurer

John was born and educated in India then spent the next 17 years in the UK. He has lived Sydney for the last 38 years. John is married with two children, both solicitors, and his granddaughter, Isabelle, who is nearly one, has DS.

John is a retired Chartered Accountant and recently worked for nearly 10 years as a Company Secretary part time with a Not -For -Profit company. Prior to retirement John worked as an auditor, accountant and finally as a Company Secretary for a large company which was part of a multinational group of companies. In the UK he worked for a number of firms of Chartered Accountants.


Board Members


Josh Coburn, Board Member


Graeme Dubé, Board member

Graeme lives with his wife, Vivian and adult daughter, Sara. The family have been members of DS NSW since Sara was born in 1982 shortly before the family moved to the Blue Mountains. Graeme is retired having spent 40 years in the hospitality and tourism industries. During that time he managed and marketed hotels in Sydney and a resort in the Blue Mountains. He has managed local government and regional tourism authorities and published guides for visitors to Greater Sydney.

Graeme and Vivian bring a wealth of experience in the journey they have travelled in raising Sara. Graeme has a particular interest in the mental wellbeing and future accommodation needs of adults with DS. He is keen to see the continued advancement of the Up Club! and plans to take a role in the Association's corporate governance.

Margot Elliffe, Board Member

Margot is a registered nurse and midwife with extensive experience in child and family health. She is also the mother of four children of whom the youngest, and only girl, is Tara who has Down syndrome.

Margot has a long history of involvement with DS NSW, and has held numerous positions both on the Board and in executive roles. Since 2012 she has been Vice President of the Association. Margot has also been active in establishing the national federation, Down Syndrome Australia, and is currently the NSW representative on the Board of that organisation.

Margot has attended many conferences, both nationally and internationally, always with the focus of how she can learn and improve life and opportunities for Tara and others with DS. Margot’s sons also attend DS NSW and international conferences, and the Up Club to support Tara and her friends.


William Grieve, Board Member


Andrew Hinde, Board Member


Jacqueline Little, Board Member

Matthew Kelly, Board Member

Richard Yee, Board Member

Richard is a Director in the Actuarial Services practice of Ernst & Young (EY).He has worked in the general insurance industry for over 25 years and has worked for major insurance and reinsurance companies in senior roles. Prior to joining EY, Richard set up a boutique actuarial consulting firm for eight years which included performing a number of Appointed Actuary and External Peer Review roles. He has been a Board Member and Treasurer of the Down Syndrome Association of NSW since 2012.

Richard and his family have been involved with the Down Syndrome Association since its inception.


| Updated: 21 October 2015