The activities and direction of Down Syndrome NSW are overseen by a Board of directors who are elected by the membership of the Association each year.

All positions are voluntary and both Ordinary members and Affiliate members can nominate for the Board.

Board Members - 2018

Jason Lloyd, President

Greg Simmons, Vice President

Greg's involvement with the Down syndrome community began with the birth of his daughter, Kate, who has Down syndrome. He has spent nearly 21 years sitting on various not-for-profit boards and committees - Down Syndrome Association of SA, Lifestart, Special Olympics Upper North Shore Region, Association for Children with a Disability and, Down Syndrome NSW. In 2012, Greg co-founded a community based Fun Run – the Kuringgai Chase Fun Run and Barry Easy Walk - to raise funds for the Special Olympics Upper North Shore Region. Greg was originally invited on the Board as a commitment to oversee the successful adoption of Blackbaud technology at DS NSW for our Community Engagement and Membership teams. Since then, Greg has acted as a trusted advisor to the Association, utilising his background in fundraising and outcomes technologies.

Margot Elliffe, Secretary

Margot is a registered nurse and midwife with extensive experience in child and family health. She is also the mother of four children of whom the youngest, and only girl, is Tara who has Down syndrome. Margot has a long history of involvement with DS NSW and has held numerous positions both on the Board and in executive roles. Since 2012 she has been Vice President of the Association. Margot has also been active in establishing the national federation, Down Syndrome Australia, and is currently the NSW representative on the Board of that organisation.Margot has attended many conferences, both nationally and internationally, always with the focus of how she can learn and improve life and opportunities for Tara and others with DS. 




Jacqueline Little

Mark Bezzina

 Luke Warner

 Hayley Warren