This is your NDIS

People with disability, their families and carers and the service provider sector must have an NDIS that’s the best it can be.

That means letting our decision makers know what’s working, what isn’t and what needs to be done to make it better.

We’ll be releasing our first Every Australian Counts Community Report Card in December and we need you to shape it.

This is your NDIS. Fill out this simple survey to make sure you have your say -

Tracylee Arestides | 2 February 2016

Early Bird Pricing has now been extended until Friday the 19th of Feb!

This is an essential conference for any educator working with a student with Down syndrome. The conference aims to equip attendees with a toolkit of practical strategies, information and resources to best support students in various educational contexts.

Register Now! Download the program

Read more ...

Jackie Little | 30 August 2016

It is with sadness that DS NSW has farewelled a number of employees over recent times.

Tracylee Arestides our Executive Director, Judy Davidson our Information, Training & Support Team Leader, Ben Chinnock our Events Manager and Karen Houghton our Business Manager have all left DS NSW over recent times to pursue other opportunities. We wish them well in their future endeavours.

This creates an opportunity for the Board to review staffing arrangements and plan for an even brighter future for DS NSW. We will keep you updated regarding new staffing appointments as they are determined. 

Tracylee Arestides | 9 February 2016

Dennis McGuirePromoting strengths and mental well being in Adults with Down Syndrome: Lessons learned from the Adult Down Syndrome Center, Chicago.

Down Syndrome NSW is delighted to announce that Dennis McGuire PhD, internationally renowned Down syndrome behavioural expert, will visit Australia in May, 2016. Dennis is co-author of Mental Wellness in Adults with Down Syndrome and The Guide to Good Health for Teens and Adults with Down Syndrome.


Dennis McGuire will present a series of seminars  Sydney for parents, carers and service providers. There will be separate professional development seminars for health professionals with an interest in intellectual disability.  Interactive webinars with Dennis McGuire will be announced shortly for people living outside Sydney.

Register Now!

Read more ...

Tracylee Arestides | 2 June 2016

Down Syndrome NSW is selling Entertainment™ Memberships and with your support, the funds we raise will be used towards our programs and services.

If you haven’t already purchased your Membership this year, this is your chance to support us and be rewarded with over $20,000 of valuable offers!

Buy from us today!

Read more ...

Mary Mamootil | 10 December 2015

2016 Calendar3.jpgThe moment we've been waiting for. . . . .

Bigger than Star Wars (almost)! Brighter than NYE fireworks!

It's the 2016 Down Syndrome NSW Calendar.

Get you copies now by emailing This email address is being protected from spambots. You need JavaScript enabled to view it. with your payment details and we will post the same day (up to and including Friday 18 December)

A big thank you to our wonderful volunteer calendar creator Craig Peihopa and all the fabulous families who shared their photos.

Tracylee Arestides | 13 April 2016

Dennis McGuire

We have had many families contact us about Dennis McGuire’s upcoming Mental Wellness & Healthy Living seminar in Sydney that we have decided to offer a special rate for support workers attached to families!

If your person with DS has a key support worker they can now attend for just $90!

Register Now!

Read more ...

Kate McNamara | 27 October 2015

IMG 31601At the recent AGM Rohan Fullwood and Tara Elliffe reported to the Meeting about their experience of the World Down Syndrome Congress in Chennai, India.

The World Down Syndrome Congress is held every three years in a different country. Rohan is the President of Up! Club and this is the sixth time he has been to a World Congress.  India was the fourth World Congress that Tara has been to.

Read more ...

World Down Syndrome Day

March 21 is celebrated internationally with World Down Syndrome Day and this year the theme is My Friends My Community.  This global awareness day is officially observed by the United Nations and traditionally celebrated in NSW by members of our community getting together to have T4321.

Read more ...

Tracylee Arestides | 24 September 2015

Many riders, individuals and teams, are revving up and hitting the road today to support the work of DS NSW, specially in rural and regional areas. We wish them well.

DS NSW Board member Chris Elenor is riding again this year. This is his story . . . . 

Read more ...