Our exciting brand-new website is currently being built to give you the best experience, information and resources. This website here is a simple holding site. Our new website launches in March 2024. Contact us anytime at (02) 9841 4444 if you’re needing information, services and support. We can’t wait to share our awesome new website with you!

Meet Our Board

Meet the dedicated board members at Down Syndrome NSW. Our passionate board members bring a wealth of expertise and a profound understanding of Down Syndrome to the table. Committed to excellence, our team works collaboratively to advance our mission and enhance the lives of those we serve.

Lorraine Clark AM

Lorraine Clark AM

President

Experienced Project Management Consultant with a demonstrated history of working in the sports industry. Long term volunteer and administrator. Lorraine has held numerous board member appointments for DS NSW and Australia and within the Asia Pacific region. Her lifelong work for Special Olympics has also seen her hold many positions nationally and internationally.

Christopher Hebert

Christopher Hebert

Board Member

Chris is the father of 2 children and his 4 year old daughter has Down syndrome. He works in the public service in research and communications.

Rene Pennock

Rene Pennock

Board Member

Rene is the father of an 11 year old son with Down syndrome. With over 14 years-experience as CEO or Company Secretary for NFPs, Rene offers a complete range of corporate and governance skills.

Margot Elliffe

Margot Elliffe

Board Member

Margot Elliffe is the mother of 4 adult children, the youngest, Tara having Down syndrome.

Margot has background professionally in health and has a particular interest in the health outcomes for people with disability.

Margot mainstreamed Tara for her education and watched her gain a job in open employment and is passionate in the belief that people with Down syndrome belong in the community and are offered the same opportunities as everyone else.

This is achievable with the right supports and an acceptance by the community through education and awareness of the rights of all individuals.

Lyn Legge

Lyn Legge

Board Member

Lyn is the mother of four girls, the youngest two girls have Down syndrome. She has an accounting background and has served on a number of committees. Living in Coffs Harbour, Lyn has a focus on families in regional areas. She been active in organising local events for families and sees new technologies as an opportunity for regional areas to better connect with other families and events.

Charlie Burfitt

Charlie Burfitt

Board Member

Charlie is a father to four young children. His second child Raphael has Down syndrome. He previously worked as a disability support worker where he worked closely with many adults and children living with Down Syndrome and now works as a lawyer in the property industry. Charlie is passionate about ensuring that Australian society sees and values the great benefits that those with Down Syndrome bring to our community.

Nicholas Gotsis

Nicholas Gotsis

Treasurer

Nick has an older sister with Down syndrome and a long-term history of volunteering with Down Syndrome NSW. He is an accountant and manages a chartered accountant’s business.

Key Governance Material

Explore this section to easily access essential resources such as the annual report, complaints records, strategic plan, and constitution. Here, you’ll find a wealth of information vital to understanding our organisation’s structure, goals, and performance.

CONSTITUTION

 

STRATEGIC PLAN 2021-2023

ANNUAL IMPACT REPORT 2023

COMPLAINTS & FEEDBACK POLICY

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