Our Programs
Our programs, services and supports help create a brighter future for people with Down syndrome.
The Congratulations Initiative works to support and nurture families and ensure all parents have up to date, fair and equitable information and support during both the prenatal and early years. We celebrate new babies through provision of hospital visits, parent support networks, individual guidance, workshops, resources and gift packs to support families for the very best start.
Furthermore, it aims to upskill healthcare professionals in delivering a diagnosis, providing up to date information about Down syndrome through our Medical Professionals Packs, linking Down Syndrome NSW as key support partner and most importantly saying "congratulations" not sorry.
We have a dedicted mobile number for parents, carers and professionals to reach out who may be seeking more immediate support and advice or who would like the option to text message, face time or directly contact our Congatulations Initiative team.
Prenatal & Diagnosis Support
- Individual support and guidance
- Phone, FaceTime and email support
- Information, resources and fact sheets
- Home visits
- Workshops and seminars
- Prenatal information packs and gifts
Babies & Early Years
- Individual support and guidance
- Phone, FaceTime and email support
- Information, resources and fact sheets
- Hospital and home visits
- Parent support networks
- Workshops and seminars
- New baby welcome packs
- Fortnightly Online CatchUP!s
- Quarterly New Babies Days
- Our private Facebook group
Health Professionals
- Health professionals information packs
- Best practice support and training in delivering a prenatal/postnatal diagnosis of Down syndrome
- Information, resources and fact sheets
- Inservices, workshops and seminars
- Phone and email support
- Referral pathways for your patients
- Newsletters
Click on the form below to complete your details and we will be in touch to dicuss how we can work collaboratively.
New Baby Pack
- About Down Syndrome
- Causes & Incidence of Down Syndrome
- History of Down Syndrome
- A Guide for New Parents
- Frequently Asked Questions
- Myths & Facts
- Our Stories
- Breastfeeding your Baby with Down Syndrome
- Early Years
- About the NDIS
- NDIS Eligibility Checker
- NDIS Booklets & Fact Sheets
- Health Screening Tool
- DS NSW Prospectus
Health Professionals Pack
- About Down Syndrome
- Causes & Incidence of Down Syndrome
- History of Down Syndrome
- Prenatal Screening for Chromosome Conditions
- Tips for GPs on Prenatal Screening
- Health Screening Tool
- Growth Charts
- A Guide For Expectant Parents
- A Guide for New Parents
- Myths & Facts
- Our Stories
- NDIS Information for Health Professionals
- About the NDIS
- NDIS Eligibility Checker
- Breastfeeding a Baby with Down Syndrome
- DS NSW Prospectus
Please note these information packs are avaiable in hard copy.
Our Congratulations Initiative Packs
Congratulations Initiative Events: Prenatal and New Babies with Down Syndrome
Online Catch UP! 2024 - For Parents and Carers
Every second Thursday 10:00am
Online
Please note that the Congratulations Initiative is not an emergency service.
If you require urgent support or medical assistance, please contact your General Practitioner, 000 or Lifeline 131 114.
Our programs and services depend greatly on the generosity of the community. We are deeply grateful to individuals, businesses, bequestors, grants, trusts, and foundations for their support. If you would like to help sustain these vital programs, please click the button below.
Volunteer
Read more about how you can make a difference as a volunteer at Down Syndrome NSW.
Become a Member
Actively contribute to our mission of creating a more inclusive and accepting society for individuals with Down syndrome.
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